One of my greatest fears is getting a flare up due to my ulcerative colitis and unfortunately, it seems like I'm in the midst of one now.
There are some diseases or conditions that people suffer every day that we don't know the type of struggle they face day in and day out. Every time I hear of someone with the same condition as me, a part of my heart breaks because I know the pain they can suffer if their medications don't work.
At the current time, mine seem to be failing me.
Unfortunately, this means that I often have to justify the pain of eating because I need to enjoy the taste of the food rather then avoid it and deal with the hunger pains. I have to deal with the looks of concern from my mom whenever I have pains in my stomach that makes me need to pause a show we are watching. And I have to be a rock of strength during the especially tough times because I don't like having this condition be a weakness.
A few weeks ago, when my face broke out like crazy, I found out that I was on some "big" medications for such a "young girl". Not going to lie, those confessions from the nurse practitioner and another doctor scared the crap out of me. These medications that wear down my immune system? Yeah, not very much fun. The medication that makes me tired all the time? I love not being able to work a normal nine to five job without being exhausted by the end of the shift.
Ulcerative colitis is something I would never wish on one of my enemies, let alone to anyone I love. I am lucky to have a great support system whenever these lows come around to try and make me smile, and forget just for one moment that I am not normal.
Showing posts with label Side Effects. Show all posts
Showing posts with label Side Effects. Show all posts
Tuesday, October 15, 2013
Wednesday, September 19, 2012
Side Effects--Nothing But Trouble
Medication side effects.
Boy, are they sometimes a pain in the ass.
Over the past few years, I have had some side effects to the many medications I have been on. I've put on weight. My face has broken out like a teenager. I have had bleeding issues. Bruises magically appeared after barely hitting an object. I've been tired and I've been wide awake.
But most recently, I have been itchy. And while some may think this isn't an awful side effect, it is top ten most uncomfortable thing I have had to go through.
Seriously, it's that bad.
Last night, Dad and I tried to figure out what makes the itching start. It's not like I have dry skin, or that I haven't been putting lotion on to try to prevent it. Instead the itching continues, to a point where I let out an aggravated sigh, wishing it would just stop. I'm sure most people I'm with don't notice it unless I complain about wanting to crawl out of my skin.
But every time my nails go to scratch my arm, I realize with annoyance that it's starting again.
Rarely do I go online to see what my different symptoms may mean. Last time I did that, I sat in my room one morning, crying, because I thought I would need surgery to get good old Henry out. For this reason alone, I don't like to diagnosis myself from the internet. The itching has gotten SO annoying, that I broke my own rules and turned to good old Google to find out the connection of my current problem and Remicade.
And I found out I wasn't the weird one. This wonderful side effect has happened to other people, with no explanation of why it occurred, or how to stop it from coming. Instead, there were people's own remedies, and their accounts of mystifying the doctor.
To me, this is a blessing.
When I was explaining to Dr. I last week about my itching, he had never heard of such side effects and that left me feeling defeated. Once again I was the only weird one with this problem. But thanks to Google, I found others just like me. And that's refreshing.
Known side effects suck. Unknown side effects are even worse, and it's nice to know that I'm not the only one experience the problem of non stop itching
Boy, are they sometimes a pain in the ass.
Over the past few years, I have had some side effects to the many medications I have been on. I've put on weight. My face has broken out like a teenager. I have had bleeding issues. Bruises magically appeared after barely hitting an object. I've been tired and I've been wide awake.
But most recently, I have been itchy. And while some may think this isn't an awful side effect, it is top ten most uncomfortable thing I have had to go through.
Seriously, it's that bad.
Last night, Dad and I tried to figure out what makes the itching start. It's not like I have dry skin, or that I haven't been putting lotion on to try to prevent it. Instead the itching continues, to a point where I let out an aggravated sigh, wishing it would just stop. I'm sure most people I'm with don't notice it unless I complain about wanting to crawl out of my skin.
But every time my nails go to scratch my arm, I realize with annoyance that it's starting again.
Rarely do I go online to see what my different symptoms may mean. Last time I did that, I sat in my room one morning, crying, because I thought I would need surgery to get good old Henry out. For this reason alone, I don't like to diagnosis myself from the internet. The itching has gotten SO annoying, that I broke my own rules and turned to good old Google to find out the connection of my current problem and Remicade.
And I found out I wasn't the weird one. This wonderful side effect has happened to other people, with no explanation of why it occurred, or how to stop it from coming. Instead, there were people's own remedies, and their accounts of mystifying the doctor.
To me, this is a blessing.
When I was explaining to Dr. I last week about my itching, he had never heard of such side effects and that left me feeling defeated. Once again I was the only weird one with this problem. But thanks to Google, I found others just like me. And that's refreshing.
Known side effects suck. Unknown side effects are even worse, and it's nice to know that I'm not the only one experience the problem of non stop itching
Wednesday, September 5, 2012
Seeing as I'm finally off of the steriods, I am finally seeing the side effects to the Remicade treatments.
Number one? I feel like I'm breaking out all over the place and that I look really silly with it. Plus, I'm tired all the time and can't stay awake if I ever lie down for any length of time. Which is not fun because I do not like being tired.
I'm hoping this goes away ASAP because I'm really over it.
Number one? I feel like I'm breaking out all over the place and that I look really silly with it. Plus, I'm tired all the time and can't stay awake if I ever lie down for any length of time. Which is not fun because I do not like being tired.
I'm hoping this goes away ASAP because I'm really over it.
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