Showing posts with label recovery. Show all posts
Showing posts with label recovery. Show all posts

Sunday, April 7, 2013

To put it simply, I've always been on the other side of the bed.  I have always been the one reassuring everyone that I am okay, sometimes lying a little bit because you don't want your loved ones to worry even more about you.  I've always been the one who has been bored out of her mind at home while everyone else is living their lives.  I've been the one who sleeps to pass the time instead of watching countless reruns and the clock slowly pass.

Being on the other side sucks almost as much as being stuck in that bed recovering.  I constantly worry about Mom.  I worry that she's pushing herself too much or if she is comfortable.  I worry that she'll start to do things that she shouldn't (cough Mom you need to stop doing that...cough).  I worry that I'm not doing enough to help her out.  And I worry that I'm not doing enough to help my dad.

My mom is strong and so is my dad.  But it's still scary when I don't know how to help them.  I know Mom is going to have her good days and her bad days.  That's what the recovering from a major surgery calls for.  There are times though, I wish I could take all of this away so they didn't have to deal with it.

I just want one year that my family doesn't have to worry about recovering from medical problems or hospital visits.  I want one normal or boring year.  Weird request right?  But honestly, that sounds magical to me.

Monday, April 1, 2013

A Love Letter to My Amazing Mom

I know I have written this many times in this blog, but my mother is truly a saint.

She is recovering from this major surgery, her second major surgery in the past two years, and I get inspired every time I watch her walk down the hall.  Yes, I may give her a hard time as "pay back" for all the times she asked me if I was okay. But I worry about her every day and wish that all the pain she has felt the past few months/years goes away super fast.

She is one of the strongest people I know; barely complaining after this hip surgery.  I can tell how bored she is because my mom is not the type to just sit around and do anything.  It hasn't even been a week, and yet my mom wants to wash dishes because "she can just stand there."

My mother.  She supports me with everything I do without a question and all I could wish for is to do the same in return.

Mom, while I know you are wicked bored right now, just know how proud I am of you for the strength you have shown since this surgery and every day before it.  Please do not be afraid to ask me for anything; from putting on your slippers to moving some books into the living room.  I love you a lot and can not wait until this all is such a distant memory.


Wednesday, October 24, 2012

I Feel So Close to You Right Now

Two days at work down. Two more to end the week to go.

While some might not agree with me getting back to work, it's good for my soul.  Everyone at work is so understanding for everything I have been going through, and they are all so helpful.  I have a system now.  I sit on a chair and type up prescriptions with my leg sitting on top of one of the recycling bins under the desk/table/counter thing.  I don't really move from there, instead ask for help from my coworkers when I need to check if we have something, or have to give the script to the pharmacist.  

Tenzin and Holly check up on me on a regular basis; actually everyone does.  I have people making sure I'm doing well throughout the day, and people who look at me like I'm crazy when I want to get up and do something like walk to the other side of the pharmacy.

I won't lie to you; after a day at the "office" I feel completely drained.  It's tiring sitting on a chair all day just punching in data.  I have turned to Tenzin multiple times and said how I'm ready to fall asleep throughout the day.  But it's soooo much better then sitting in my bed feeling sorry for myself.

Today was a day off and I didn't really do much other then listen to Taylor's new CD and fall in love with it.  Even though she gets a lot of backlash for constantly writing about her failed relationships, I love how she somehow puts my feelings in words with her songs.  Seriously, it's sometimes really creepy.

Tonight is the LAST night of those devil shots.  Or at least I'm crossing my fingers and toes that it is because my stomach is starting to look like a smiley face with the little bruises.  

Tuesday, May 22, 2012

Time Flies....

Here's a fun fact for you all.

It has been a year since I returned home from my week long "vacation" at Yale New Haven.

I knew the anniversary was coming up, but I didn't know exact dates.  I went back in this blog and saw I went home on the 21st.  Which means that yesterday was the wonderful day that I gained my freedom back.

A lot has changed since I went into the hospital that early early Monday morning.  For starters, I know exactly what I have and why my stomach had been acting up.  I'm still the stubborn girl who got pissed off she had to stay at the hospital, but I'm trying not to close up when things don't go my way (my parents may disagree how well I'm doing on this one....).  While I had all these hopes when I got out that I would be magically cured, I know now that a cure isn't possible and that I may have flair ups the rest of my life, but with rest and guidance from my doctor, I can get through it.

I learned other things.  That I'm stronger then I was when I first went into the hospital, and even when I first got out.  Also, I'm more open to what is going on with my health which was not the case before going in.  I hid how bad it really was, because I had written it away that the problem would go away without doctor's help.  Now, I tell my parents everything, even when I have random bruising on my legs (which is really annoying by the way but I'm hoping the summer will make it not as noticeable).

I can remember how weak I felt when I got out that Friday afternoon, but how extremely excited I was to be out, to have McDonalds, to go in and see people from work.  I remember being excited to go to a Bluefish game, and to the Seas after the game, making jokes with Blair about the world ending and him using that as a pick up line.  I remember how the world just felt so new because I had spent the week, hooked up to various machines, in a bed, not able to do anything on my own.

Sometimes I wish I could go back to that excitement of a brand new world and other times I realize I wouldn't want to.  I enjoy my life.  While there are tears, they have been mostly of joy as of late which a year ago they were mostly of frustration and sadness. And my world is exciting, just not in the getting out of the hospital and things are going back to normal kind of way....

Wednesday, May 9, 2012

Cause You Never Had it So Good

I realized something as I was getting ready for work today....

It's almost a year since I was rushed to the hospital and got to spend a week with the lovely staff at Yale Hospital.

Now some may be wondering why I remember that wonderful anniversary, or even care.  But it is an extremely important milestone in my life.  I was not in a good place then, and I've grown leaps and bounds.

And I have to say, with the year anniversary approaching, I could not be happier to where I am, and look forward to all the growing up I still get to do.

Saturday, December 17, 2011

Mamma dukes has been home for a day now and I can already tell she is going stir crazy.  And let me tell you, she is such a rockstar.  Not even joking.

When I went to visit her on Thursday, she had already been walking around.  Yesterday, she got released from the hospital, got home, and had to walk that long long pathway to the front door and the even longer distance up the front stairs.  Now for those who don't know pain, it's like a mile when you are in it.  And she did traveled that distance with grace and a silent determination that honestly brought tears to my eyes.

I never would have thought I would be brought to tears by being so happy for someone. The past few days I have been brought close to tears for that.

Now, it's not to say frustration has not set in for mom.  This is a woman who can not stay still at all and is always on the move.  Even when she has a cold, she is moving.  It's nuts.  So to have to stay in bed all day, it's maddening.  And it's going to be a tough journey for her.  But my mom? She's a tough cookie.  She gets up when she can.  She sits on the bed or couch when she can.  I'm pretty sure she is trying her best not to take her pain medication and just deal but sometimes it's just better to take the medication.

Now I'm hear to entertain her as best as I can, but I know it's difficult.  Dad and I sat on Mom's (really Chris's but whatever) bed to eat dinner tonight.  Pizza from down the street.  And we were just trying to lift her spirits, just like her and Dad used to do for me.

My mother is a beautiful woman who has always had a strength and determination that I always admired.  Gotta love her even more now when she is in incredible pain, but still puts on a smile and very rarely complains.

PS. You should see all the get well wishes and such she is getting.  She is SERIOUSLY loved.

Wednesday, December 14, 2011

"I'm Eating Breakfast...."

All I wanna do is go visit mom.  To keep her company and try to get her mind off of everything like she tried to do with me.

But instead, I'm going into work.

Update from this morning though:  Mom was having breakfast when I called her earlier in the day, which made her so excited.  Food. It's the most important thing we worry about.  She said she hasn't been in pain, but that sitting up in the bed sometimes makes her light headed.  Last night when she was sitting up she had to recline the bed cause she was in pain.  But go figure that vaso would be part of the whole experience.

I'm gonna call her later to see if she got to walk around at all.  They tried yesterday to have her get up from the bed to move to the chair and she started to get light headed and she couldn't do it.  My mom is a warrior though.  She's gonna do it.

Monday, July 25, 2011

Seven Months Later....

There is a sense of irony that I would finish my Warfarin about seven months after I was rushed to the hospital for not being able to walk, and subsequently discovering I had a blood clot which I later named Henry.

Today marks the day I had been wishing for since starting my Warfarin.  The last day I have to take it.  Today is the last day I am able to take a full dosage and thus means I am done after today's 15 mg dose.  

To say I am relieved is the understatement of the year.

I have had to deal with Henry now for seven months.  Those are seven very long months.  From crawling on my ass to get to the bathroom before we knew what it was, to graduating to crawling down the stairs when I needed to go to doctor's appointments, trying to laugh as I rang in the new year in a wheel chair, returning to work, having to deal with swelling if I was on it for too long, the countless ultra sounds and blood works, to the moment when I was told Henry was gone, and the time I would eventually go a day without thinking about the blood clot.  It's been a long journey for my family, friends and I.

While the journey continues with us discovering why I got Henry in the first place, today marks the first day of the new year that I can say I'm officially off one of my medicines that I started that day in December.  To not have to worry about taking those 2.5-3 tablets every night is going to be a serious highlight of July.

I wish I could say I'm done with blood work, but that's not even close with the other medicines I'm taking.  Small steps though right?

I really do want to thank everyone who has helped me throughout this journey of mine, especially when I was down and your kind words brought me back up.  I don't know what I would have done without my mom, dad and Chris, who were a constant support from those first few hours.  Mom, I still remember laughing to the point of tears when I had to scoot to the bathroom, before we knew the severity of the whole situation.  Your tears may have been from laughter, mine was a combination of laughter and pain now that I think about it.

Don't worry folks, I promise to keep updating this thing.  It's a form of escape for me, and while I have been failing at updating recently, I have some things I need to work out in forms of entries in here.  Even if nobody else reads this, at least I have something to show about this journey with Henry and the colitis.  Goodness, I sound like a 90 year old and not someone who is 24 years old.

Monday, May 23, 2011

Gotta Keep Your Head Up

One week ago, I was just getting checked into Yale hospital in New Haven after being at Goose Lane for hours.  Today? I had the pleasure of waking up in my own bed, without any pain or hurt that I had been experiencing last weekend.  Nice change huh?

It's funny, I have been waking up around 6ish every morning and I think the reason for that is because I'm used to getting woken up to do vitals slash blood work that my body is used to it now.  Not the best thing to get used to but, I'll take it as long as I can fall asleep again.  Which has not been happening but still, I'm home and don't need to get the blood drawing at the crack of dawn.

Today I do have the pleasure to get my blood drawn to check my INR levels.  The slight problem with that is I have not been getting the belly shots that I think jump starts my INR levels, so I know they are going to be all out of whack.  I'm also taking a very high level of steroids which I realized last night when I was trying to go to bed that is an additional factor to my INR level probably being low.  For some reason I'm not so worried about my INR levels because they told me last week that the blood clot was really gone and that I just had thickness on the walls of my veins.  

Today I get to go back to work and I could not be more excited.  Crazy, right?  I am pumped to go back to the busiest day of the week and I have no reservations about it.  I just want to go back to normal and spending a week in the hospital made me feel the farthest from normal I have in a long while.  But tonight I get to work with my friends.  So excited.

I'm going to post some of the pictures I took last week; one of my ET finger and the other of the building I was in/the view of the second room.  I know I have been saying this for a while, but I am actually doing it today before I go into work.  

Once again thanks for every kind thought and prayer everyone has sent this way.  Love you all

Wednesday, May 18, 2011

I Want Something Better to Drink

This drink for the procedure is the absolutely most disgusting thing I have ever tasted in my life.  Everything I need to take to make my insides better with tests tastes gross.  At least with the contrast, that I'm done with an hour before, tops.  This stuff I have to drink for the rest of tonight and then all day tomorrow basically while I sit and wait for the procedure to be done at four.

For my friends who read this, please keep me entertained because I'm going to need it.

On top of my inside procedure, I will be getting an ultrasound on my leg sometime tomorrow.  I have become an old pro at that simple routine, so I'm not too worried about that.  I just wish I could have remembered to keep my Ipod here, but I sent that home with the parentals tonight.

I think tomorrow to pass the time I am going to color my roommate a picture.  She has already had an insane amount of visitors since I have arrived, full house all the time.  But it never hurts to brighten someone's day with an adorable picture.

One of the guys here reminds me of Tara and Tom so much it makes me miss work a lot.  He says in front of patients how much he doesn't want to be there, but yet is staying longer then he would and is even in on his day off.   That's what those kids do.  I just wish they would text me fun stories now.

Later if I'm up and unable to go to sleep I'm writing a list of all the different foods I can not wait to eat after this week.  Remember kids, my last "meal" was a sub on Sunday for lunch.  I could barely get through my dad's amazing chicken, bacon and onion dish for dinner that night, and the salad at Harry's. Forget it.  So to say I'm in desperate need of some amazing meals is a huge understatement.

I feel bad because when I started this whole drinking thing, I had complete breakdowns and cried a whole hell of a lot. I kept repeating that I did not want to do this at all.  But I have to give props to my little brother for giving me the straw secret, it hasn't been so bad with the straw.  And I honestly want to apologize to my parents for taking my anger out on them about this whole thing.  You hurt the people you love the most is what the old saying goes and if that's the case, they have had a beating throughout this thing.

Signing off for now. I'm going to talk to my new friend next door :)

Reporting Live....

Right now I am in a new room.  With the view outside of the window being the old building I was just transferred from.  I realize that those sentences do not make sense but I could not find the irony of staring at the building I just was in for three days.

In this new room, I have a roommate who has a ton of visitors at the current time.  I have mom, dad and Chris crowded by the wall, I feel kind of bad about it.  Chris is sitting on the floor trying to get comfortable but he's so big that it's difficult for him to fit in this area.  I don't know how I will be able to do this whole roommate thing, but I'm hoping I will be out of here by tomorrow night.

Dr. I is going to do the procedure tomorrow at three which means I will be worrying until then.  Supposedly the drugs are the best things in the world, but it still makes me uneasy.  I guess I will finally have my answers though which is what I have to keep reminding myself.  I'm still on the clear liquid diet, but he discouraged me to have the watermelon Italian ice so it looks as if it will be chicken broth for me.

I'm also going to be getting an ultrasound sometime tonight to make sure the blood clot has not changed at all.  The plus about the ultrasound though is I know what to expect, the other procedure, not so much.

OH!! One of the best things since this morning is I am able to walk about, Dr. I actually encouraged it.  However, he told me the bad news that I will have to get the belly shots again to pick up my INR numbers which I do not look forward to at all.  But that's a small price to pay to get out to Washington this summer.  And most importantly be able to eat whatever I want.

Adele Makes Me Smile

Sleeping in a hospital absolutely blows.  First the lights in the hall stay on all the time.  Second, at least in my case, the beeping of the heart machine goes off every once and a while.  I was told it may go off because the buttons are loose but still, that blows when you look at the machine and see one of the numbers is zero.  Makes for a fun night.  Then, last night I had the lights of New Haven to look at because I forgot to ask for the shade to be pulled.  And if you get to sleep with all those lights and noises, you get woken up to get blood drawn.  It's a fabulous thing.

Last night/this morning when blood was drawn, I ended up channel suffering and found the Uconn vs. Pitt Big East tourney game which I was not able to watch the first go around.  Even though I knew the end result, I still got nervous.  I'm such a nerd.

Another reason I'm a huge nerd. I found the Food Network.  Happiness could not be greater when I turned it on last night to cupcake wars.

So last night I was not transferred like they said could happen in the night.  I'm very grateful for that because it would be hard to get comfortable in a new room in the middle of the night without any family/friends around to try to calm me down.

I'm crossing my fingers and toes that I can leave today.  The changes in the past twelve hours with my care have changed a lot so I'm hoping they are getting ready to set me free.  This morning I was woken up to take some medication in pill form instead of the liquid which I had been getting.  So I had TWO graham crackers with my medication because I have not been having food. HUGE doings people, huge doings.

I also ordered for my breakfast more Italian ice and iced tea.  I'm a semi happy camper.

Hmmmm.  There are tons of more stuff I feel like but I don't want to bore people with the mundane things from my morning so far.  One thing I have to say is that when the residents were doing their rounds, they closed the door so I didn't hear anything they were saying which made me happy because I was really pissed off yesterday morning.  I was going to say to them this morning they are more then welcome to come in to get my opinion if I heard them this morning.  Luckily that did not happen.

Okay so I'm alone until the parentals come which means I'll probably get bored and ramble on here.  Plus I want to show a picture of my ET finger....it glows red. :)

Tuesday, May 17, 2011

Signing Off For the Day

Today has been day and night in regards to my health but I am still in the same room and still have no idea when I get to leave.

Today and yesterday I have had more visitors then a girl could ask for.  Today though a handful of the people visiting were not a huge fans of hospitals.  Tommy for one told me he hates them and he surprised me by appearing at my doorway with Maryellen.  Aunt Barb and Uncle Mike listened to me ramble last night for a while.  Stacey and her mom surprised me when they showed up, including a little spill because we all get a little excited when we talk.  Aunt Debbie stopped in tonight a little before my girls came to visit.  I was most proud of Shannon and Meggie; Meggie because she's also not good with needles, and Shannon because she does not have a good history with hospitals.  And my Amy had the giggles which made me smile a lot.

When Daddy came in, he stopped in the doorway, amazed how well I looked.  Supposedly yesterday I blended in with the sheets.  Never a good thing.  So a HUGE plus that I actually have color today.

Dr. I came in today to check in on me, and he was highly surprised how better I am.  He said he was expecting me still needing to go to the bathroom a lot, which I really haven't been needing only because I have been drinking so much fluids.  But he seemed pleasantly surprised with my recovery.  And I kind of made him smile when I told him how pumped I was about the fact I was able to have food, even if it's just clear liquid.  It would be nice tomorrow to be able to have ice cream but I'll take what I can.  Because to be honest I want a juicy cheeseburger but that's in my future becauseeeee..... 

We decided to get the procedure to finally figure out what is wrong with me on Thursday.  Even though it terrifies me, we figure it's what is best for me, and to avoid having another one of these tragic episodes where I terrify everyone around me.  So I get to have the joys of a procedure that most people don't get until they are in their 50s.  Might as well throw it all in the mix this time around.

Thank you from the bottom of my heart for all the people who have text messaged, called, facebooked, visited, etc.  I don't think I can say how much that is making me want to get on my feet faster, to be able to play with you guys and not have to scare my love ones.  And yesterday/today was the highest amount of page views I think I have ever had on this blog, so I really do appreciate it.

Tomorrow I will probably make more posts then normal because I'm going to be bored.  Although I may be reporting from a completely different room because even though I was supposed to be transferred to the regular floor today/tonight, I'm still in the step down unit.  And if you plan on visiting, don't fret if you see intensive care.... I'm just in the step below that. :)

They are Doing Rounds Right Outside Now

Sleeping at a hospital while unusual, isn't as bad as I thought.  I just don't like the idea of not getting up to go to the bathroom if necessary but I dealt with that on my crutches as well.

The crazy lady across the hall was at it again last night and I heard the nurses telling her she is not the only patient they have.  Whenever I did wake up, it seemed like someone was in there with her.

I got woken up twice I think for blood work and what not.  It wasn't too bad, they were able to find the vein easier then they had earlier in the day.  But like I said, it would be difficult to go back to sleep again but then I would manage.  Same with earlier today at like five and eight.  Although at eight I decided I would stay up just because I didn't fell like having to deal with trying to sleep again.

Still unable to eat today which makes me even more hungry.  Wonderful for the girl who loves food. Blood levels are good though and they are hoping to unhook me from things so I can actually move around a bit.  They are also saying that I may be moving to the regular floor which may mean roommates, wonderful....I can deal.  I'm also crossing my fingers that Dr. I will give me the go ahead to eat today.


I didn't mention in yesterday's post but Dr. I did come visit me yesterday.  It was good to see him even if the circumstances aren't ideal.  He told me what he did on Friday when I talked to him on the phone which basically means I will be needing to get new medicines.


Don't worry kids, I will continue to update you guys.  Especially at night when I'm bored here by myself.  Oh and can we talk about the fact there is NO FOX which means NO GLEE tonight.  And no MTV but no Glee?  That simply blows.

Tuesday, April 26, 2011

Hey Hey Hey Goodbye

As many of you know from either my facebook or an email from my mom, HENRY IS DISAPPEARING!!!

The doctor told me yesterday that the blood clot has gotten much smaller and it's almost gone.  He wants me to continue with the Warfarin until after my trip to Washington in July.  Originally he said I could be done with it in June, but when I mentioned the trip he said stay on it till after I got home.  He said I didn't need to do blood work every week anymore but every two weeks.

And he also told me to just live my life.  At this point in the appointment I started to cry.  Huge surprise right?  He told me to let it out and stressed the fact that I needed to live my life and not worry about Henry anymore, that stressing is not going to help anything.

I did tell him how difficult it was to deal with Dr. P telling me every week that my INR levels continue to decline and that it was somehow my fault.  He proceeded to tell me that I do not need to worry about my INR levels, that they change throughout the day and that if it was between 1.5 and 2.5 then it was fine.

What's the most frustrating thing about the whole thing is getting two different stories from the different doctors.  But I'm going to trust the experts.  And that means I don't have to worry about Henry anymore, and I can even enjoy a glass of wine (his words not mine).

I cried once again outside and my dad told me I have to start to trust some doctors.  I think he understands why I don't because it's been different stories for four months, but after four months I finally am told good news.  That the freaking clot is almost gone!  And it's finally sinking in that four months to the day I have finally reached the point I never thought I was going to.

So July be expecting a fiesta of epic proportions to celebrate, if that's okay with the parentals.  But I need some celebrating the fact that Henry is GONEEE.  And sorry to say this Henry, but I won't really miss you.

Thursday, April 7, 2011

Let's Play A Little Game

Okay so we are going to play a game.  You have to choose one thing you don't think you can give up cold turkey.  I'll give you a few options.

a. Chocolate
b. Soda
c. Alcohol
d. Salad

If I know people like I think I do, most people would never answer d.  However, that is my answer.  I have basically given up b and c....only having one of each on special occasions.  I'm not a true fan of chocolate; I have to be in the mood for pure chocolate.  It's been hard to avoid the Thin Mints but we don't have as many boxes anymore and I'm trying to avoid them.  And the rest of candy bars? I've been good.

Salad? Salad is the reason I cried last night; it's the reason that when I get home from work at night I get upset that I can't make a quick salad to eat because it's better then eating all the pasta we have in the fridge.  I mean I have to be healthy, and I'm depriving myself of essential nutrients because I'm not having good balanced meals due to my work schedule.  So I eat salads to have my vegetables.


Ever since Dr. P told me that my INR levels continue to plummet with no idea why they are doing that, I have been trying my very best to not eat salads, and to continue to be semi good with not eating chocolate.  This salad deprivation is what caused another breakdown last night, and what brought me close to tears when I looked in the fridge tonight upon my arrival back home.  You see we have a whole new head of lettuce, and all I want is some of it, but I can't.  It really is such a tease, and I don't know how much longer I can avoid it.  


Truth is we are on month four of this bullshit with no resolution in sight.  I have a flight to Washington booked for July, I need some sort of change.  The doctors have no reasoning as to why my INR level is not therapeutic like it's supposed to be.  They seem to be stumped and I think part of the reason I have been so emotional recently is because there are no answers.  I take pills eight times a day, which basically means I'm taking pills every two hours, or what feels like ALL DAY.  Not only that but the blood clot had not gotten any smaller since the last ultra sound and I won't know how it looks again till the day after Easter.

I was told at the beginning of this thing that I did not have to change my diet.  It's funny we were more concerned about keeping my weight level because of my insides.  After I have seemingly gotten that situated for the time being, now I have to worry about what I'm eating because my doctors can't figure out why my INR is not staying where it should be.  It honestly boggles my mind.  Okay maybe not, I understand they are trying to get it to a certain point and taking away certain food is trying to find said solution.  But when I'm not eating "tons of it" like they told me, just small bowls of it to get my veggies in, I don't understand how this is helping me instead of deterring my health.


I remember a while back when I cried to my dad after being told some news, maybe it was the colonoscopy, that I was done with this all.  I said it again last night.  I'm grateful for being back at work, for being able to interact with people and able to eat and not bed ridden.  But when I have to cut on some of the things I love without getting any sort of resolution, I just don't see the point anymore.  Taking over ten pills throughout the day?  How is that living to a 24 year old?  Because I can honestly say I worry more about when I'm taking my next pill and if I took them all then what I am doing.  And I'm just completely over it all.

Wednesday, March 30, 2011

There Really Isn't a Dull Moment With You

A good family friend said the above quote to me this past Sunday when I told him about cutting  my finger with the bread knife.  He sort of laughed at me because he knew about Henry and this whole inside problems

That quote however perfectly embodies my life this afternoon.

After getting my blood drawn and being told I was not needed at work tonight, I realized what a beautiful day it was.  I did not want to do the whole exercise thing without anyone home, ya know in case I get hurt, so I figured now that Mom was home, I could go for a little bike ride.  Because it's beautiful ya know? WELP, in preparations for said bike ride, and to ease my mother's mind, I decided to make a little note on my hand.

I thought this would ease her mind a little, because in case anything WERE to happen to me, at least the EMTs would know that 1. I was on blood thinners and 2. That number could be called to help a girl out.

Overall it felt GREAT exercising again (first real time since the whole adventure began) although my legs KILLED after.  You know when you live in the woods/suburbs when you go by roadkill which completely grossed me out.  Luckily I was on a bike this time and not running by which I have done as well.  I had to walk the bike up the hill.  If you have ever been to my house, you would understand. 

Monday, March 28, 2011

Long Live the Walls We Crashed Through I've Had the Time of My Life With You

Thank you.

No two simple worlds that contain more gratitude and emotion than my family or I can even begin to express.  I can't speak for my family, but I can for me.  And I can honestly say those two small English words can not begin to cover the gratefulness I could like to share with the people in my life. 

As most of you know, or anyone who has spent more than five minutes with me, this year has been a very trying time.  Go back many entries to the very first post, and as you continue to read this blog, you will dive into a terrified girl's world.  Yes, I was over dramatic at times, but when I was down, I felt the hits kept coming.

Three months after this crazy journey began, I'm still not completely cured and do not know if I ever will be one hundred percent back to how I was.  But I'm getting treated and better than I felt at the end of December.

But I wanted to take time not to update about silly blood work, or doctor's visits.  I wanted to thank you.  The person sitting at your computer reading this.

Throughout this journey, I do not know what I would have done without the support of my family, friends, people who love my parents that don't really know me.  I have gotten cards, emails, text messages, posts, phone calls, visits and so much more well wishes that it literally shocked me.  I always knew I was loved but this tough road proved it; I have some great people on my side.

The support is what got me through most of those early days.  I became a hermit.  Ashamed of what I was going through and at a loss of words to convey the seriousness of it all.  When I was at a low, often one of you brought me back with a kind message that had been passed along.  Happy/grateful tears almost always emerged.  Ask my parents.  I was a blubbering baby.

Speaking of, my two solid supports.  Mom and Dad.  They have been with me through it all, my rocks.  I have not seen them cry once, and yet they have been there to wipe my tears away and provide a never ending hug.  When I wanted to quit, they wouldn't let me and knowing they were by my side helped me continue.  I know this whole thing has not been a walk in the park for them, I have been a pain in the ass a lot, have been unnecessarily mean due to frustration and the fact that they were there for me to take it out on.  And yet they stayed next to me.

Mom and Dad, I love you more then you know and owe my sanity to you.  I promise to not forget this when you guys get older.  I owe you tons.

To my friends, near and far, thank you.  Thank you for taking me out.  Thank you for making me laugh and smile.  Thank you for dealing with me when Henry flairs up.  Thanks for getting me food.  Even if it means getting yelled at by Meggie.  Thank you for doing things for me when I was incapable of it.  Thanks for listening and trying to understand.  Thanks for the out of state visits and surprises.  Thanks especially for just being you when I needed normality in my life.

This may seem like a final post to this blog, but it's not.  I love writing, and sharing my writing with others.  And let's face it, Henry and the insides have a lot of explaining to do.  Once I'm off these silly blood thinners, that's when the real fun and tests begin.  And while it's not going to be pretty, I hope you sometimes check back to see how this crazy roller coaster journey I'm on is going.  I promise it won't be boring.


But I wanted to thank you all:  my parents, brother, Nana, Aunts, Uncles, cousins, the Woodmont family, family friends, my friends, Mom and Dad's coworkers, bosses, coworkers, people who barely know me, and anyone who I may have accidentally forgot, thank you EVERYONE for your support and well wishes.


Thank you.


Those two simple words that I don't feel like can even begin to show my appreciation to all of you.


P.S. The title is from Long Live by Taylor Swift.  Go check it out.

Monday, March 21, 2011

I'm a Nerd, and I'm Okay With That

Confession time.  I am a huge book nerd.  I love to read.  If I had tons of money, I would probably spend most of it on books.  I want my collection to grow, but don't have the money and/or space to do so.  But I love to read.  It's an addiction.

The other night I text messaged Brendan because I am reading a book that I feel like our friends would find hilarious.  And while I was reading this, I thought how Brendan would truly enjoy my current read.  When he heard the title, I think he understood.  The book is not something I would recommend to my mother, or any adults in my life because well, it's the sick humor that my generation seems to enjoy.  The book?  Assholes Finish First by the one and only Tucker Max.  

If you ever heard of Tucker Max you will understand he is a horrible human being who seems to have zero redeeming qualities.  Or if you are a guy, he is God-like.  I enjoy his sense of humor, the fact that he will talk up all his drunken nights and hook up to make himself seem awesome.  He states constantly "I am the greatest human being alive" or sentiments of that sort.  Now being a girl, I should hate this book and the way Max treats women.  But honestly, I find it hilarious.  I have laughed out loud way too often while reading this and can not wait to pass along this book to along to Brendan and Shannon and the rest of my friends so we have something to joke about when the Jersey Shore ends.

From one side of the spectrun to the next, if Assholes Finish First is a book without any morals and emotions, my next recommendation is for those who love summertime reads.  These are the books that do not take much thought while reading, that you can bring down to the beach with you and are going to enjoy fully because it's about girlfriends and relationships and all that good stuff.  For me, these are the types of novels that I absolutely adore unfortunately and tend to read a lot.

Something Borrowed by Emily Griffin has now placed itself on my most favorite books.  To say I could not put it down would be a complete understatement.  When I was at work, I wondered what was happening in Rachel's world.  Crazy right?  Anyway, I think part of the reason I loved this book so much was how much I related to Rachel.  She is the girl who tends to be overlooked and while she loves her life, she sometimes does not see her full potential.  This story is all about relationships.  The ones you have with your long time friends, the romantic relationships and the most important relationship of them all: the one with yourself.  The book continues on from the point of view of Rachel's best friend Darcy in Something Blue.  While I enjoyed that book as well, I could not connect so much with Darcy.  Griffin writes wonderfully honest stories and explores relationships in a honest way that many writers try to do but fail.  

Meggie has another book of hers that she is going to let me borrow that I am so excited to try reading.  In fact, the day of the parade when I had time to spare after getting ready, I sat in the middle of Meg's room and started to read it.  Yes, I'm that big of a dork.

The last book I have read recently is This is Where I Leave You by Jonathan Tropper.  I picked this up at Borders when I went on a little shopping spree and bought it because the back sounded interesting and I thought I read a review about it in People magazine.  Now this is not the typical book I read, but I do recommend anyone who reads this to pick it up at the library or borrow mine.  The book is about family dynamics.  Family is family and this book shows that there can be several different personalities within a family that can clash when they must spend a week together.  This book is also funny.  Not similar to Tucker Max but in a way that I laughed thinking this is exactly what would happen if someone wrote a story about my family having to spend 24/7 with each other for a week.  I loved the way Tropper brought sarcasm during a tragedy, and how underneath all the snarky remarks the siblings said to one another, you can tell there was love there.

I think I'm going to continue this little book update thing every once in a while.  I was going to post pictures of the books, because while the saying says don't judge a book by it's cover, I totally do.  But then I decided that would be a little silly and something that you all may not like.  These three books are pretty awesome, not for everyone that reads this blog.  While I was bed ridden, I didn't read nearly as much as my mother thought I would, but I was enjoying throwing myself a pity party.  Unfortunately with my love of reading, I tend to jump into a story fast, and read it wicked quick.  So these may be more frequent then you think.

Tuesday, March 8, 2011

MUST BE NICE

Warning---this is a complete rant.  Similar to half of my posts when I talk about my doctors.

I've decided to come up with unoriginal nicknames for my doctors because I do not like using actual names on here.

Primary doctor will be Doctor P (get it?)
Vascular doctor will be Doctor C (for the blood clot....decided C because B and P can be confused)
Gastro doctor will be Doctor I (for my insides)

Yes I'm really clever and yes, I hate that I have to come up with nicknames but I've come to terms with it.

ANYWAY, I got a ultrasound on FRIDAY and I'm sitting here at 3 oclock on Tuesday without ANY word from Dr. P about the results of said ultrasound.  Now the other two times I have gotten these done, I have found out what the results were before I left the offices.  I figured because I was at a different office then I wouldn't find out the results right away, expecting a phone call on Monday morning.  When I came back from the services yesterday without a message waiting for me about what the ultrasound said, I got a little upset.  I called, had issues with the phone lines, got even more pissed off.  I can't remember if I left a message or not, I think I did but who knows.  

I expected  a phone call this morning.  Which resulted in nothing.  I called Dr. C's office about fifteen minutes ago and his secretary if she had heard anything from Vanessa.  She had not, and told me the minute they found out anything she would call me.   She reassured me that I was not being a pain which was nice to hear.  I guess Dr. P called Dr. C three times over the course of Thursday and Friday to find out about my Warfarin levels and how that is interacting with my steroids.  But still hanging up the phone left me unsatisfied, because I still don't know what the deal is with the ultrasound.

Another attempt was made to talk to Dr. P and after reaching the office, I was told that she was gone till tomorrow.  I understand that some may find my annoying the doctors silly, but I need answers.  It must be nice to go on a little extended leave from the office without letting one of your patients, who is waiting on results from a test YOU ordered, know that you would be out of the office.  I do not expect Dr. P to plan her life around me, that's not what I'm asking.  I am asking for her to understand that I have been waiting for four days for the results of the ultrasound that I was not scheduled to have on Friday.  I have been understanding, I have been a little ticked off, now I'm just mad.  And even though I want to do everything to contradict what they are telling me because I do not trust them, I know that's not what's best for me.  I am still doing what I was told all those weeks ago, but I am losing faith in doctors.  

To end my rant, UCONN won their first round game of the Big East Tourny.  I LOVE it this time of year (I hope you read that with Pauly D's voice in mind).  March Madness is in full swing and as a avid college basketball fan, I could not be happier