Showing posts with label quality. Show all posts
Showing posts with label quality. Show all posts

Thursday, March 8, 2012

Even If the Skies Get Rough

This blog has recently become a music blog, because well, music runs my life.

I heard this gem last night while setting my alarm.  Instead of quickly setting my alarm and turning over, I sat and listened to it.  And it was magical. Then, I heard it again this morning and once again Jason Mraz gave me goose bumps with this beautiful song.

The song isn't overly produced.  It's a simple guitar and his voice.  And that voice?  You can hear the pain this guy is feeling in the story of never giving up on his true love.  While the rest of the world may have thought this relationship was doomed or completely over, he knows that she is the one and that no matter what, he will always believe they are meant to be in their life.

While I know some may be rolling their eyes at me right now, I understand wanting to fight for someone so much.  I did.  And while now I'm rolling on along, I understand wanting to let that person figuring out everything, but knowing you will be around.  And it's beautiful.  It's beautiful to think that there is this type of love out there where someone does not want to give up on you no matter what, even if you don't believe, they will believe for the both of you.

Plus, I'm a sucker for this lyrical video, because I just love how clever it was with the letters and writing out the quotes.  I know I have mentioned that I absolutely adore quotes, especially song lyrics.  And Jason has done it once again in making a song that I want to quote ALL THE TIME.

Enjoy

Saturday, October 1, 2011

Dr. I....It's Almost Our Year Anniversary

After the first visit hesitation, I have looked forward to my visits with Dr. I immensely.  He is such a genuine guy, never making me feel as if I am one of his many patients.  I always feel like I am number one when it comes to him.  I think part of the reason why I feel like that is because he came to visit every day when I was in the hospital.  The new pharmacist asked if that was due to the fact that he had to, but I said absolutely not, he came to ease my mind.  At least that's how I saw it.

Why am I talking so much about Dr. I you may ask?  It's because I had an appointment with him yesterday.

Yesterday was the first doctor's appointment I had in months.  Seriously, I had not had to step in a doctor's office since May/June and I could not be happier about the fact that it is months between appointments for me.  I guess Irene is thanks to that, but I still feel like it's a huge relief that I don't have to see a doctor every month like I had been.

Anyway, we discussed my progress per usual, but we also discussed taking me down my steroids once again.  Now we are going below the dosage I was on before going to the hospital which is exciting because I have no had any flair indications at all.  So small victory on that part.  He did say that when I see him next, which is in a few months, I should be off the steroids!!! This will be around the year anniversary of these whole shenanigans starting so I could not be happier with the idea that another one of my medications will be discontinued when the year anniversary occurs.


Anyway, I also learned my weight with this appointment and while it's completely fine with my height, I'm still not fully okay with it and will begin running on Monday to become more in shape.  Please don't roll your eyes.  Being in shape and being skinny are two completely different things and I need to start running in order to not only sort things out in my life in my head, but also to feel better about myself.


Dr. I and I also discussed what happens during flare ups.  Those damn things scare the hell out of me if I'm going to be completely honest.  Last flare up I ended up in the hospital, and a friend was recently hospitalized when she experienced a flare up.  I just do not want to end up in the hospital again.  That was not a fun experience at all.  He told me how a flare up would work in my situation and if I am understanding him correctly, it shouldn't occur if I stay on top of my medicine.  This is not to say that the medicine will eventually stop working.  I had to take blood work immediately following the appointment to check various levels, one being my liver level.  He said that it had been slightly elevated which was not caused for concern but he wanted to keep an eye on it which is why he asked for the blood work right after the appointment.


If I'm going to be completely honest here, I'm completely terrified.  I'm terrified that I will end up in the hospital again for a week, or even longer, without many people who will want to visit me.  I'm afraid I am going to eventually have to give up my favorite food because it causes a flare up.  I'm afraid that at the age of 24 I am already taking 10 different pills if I don't count the steroids which I will be off of hopefully by the end of the year.  And I'm afraid that this stupid disease is going to control my whole life.  I have had to worry about my pills whenever I go anywhere.  I have had to worry about the nearest bathroom and stomach pains whenever I go out.  I'm not a fan.  How do you explain this thing to someone who has no experience with it.  Luckily I have friends who also have it so our group has become understanding about it, but still.  How do I even begin to explain this to people who come into my life in the future?  This damn thing has been a pain for close to a year now, and I have tried to hide my worries from everyone.  But what I would not give to be normal again.  With a normal stomach that I no longer have to worry about medicine, and blood and enzyme levels.

Wednesday, February 16, 2011

Debate of the Century

Quality versus quantity.  It's a heated debate that many have been engaging in for years.  Maybe centuries but I'm not too familiar with that history and I believe that it's become a vital issue in the past few years with the development in technology.  Anyway, quality versus quantity.  Consumer goods, education, medical services.  Now a days, it seems that we can get a lot of something, let it be a shirt, an educational experience or a diagnosis but it's not going to be the quality service my grandparents would have received.  Our generation is all about go.  If you are too slow, you are often discarded to the side.  There is little patience for the quality of the job.

I understand that times are different which means that we need to change how we have done things.  There are more people in our world that all have basic human needs.  But there area  few things that the naive aspect of me expects.

Number one is common courtesy and proper quality when I seek medical treatment.  I'm not part of a conveyor belt.  Tell me what's wrong with me and actually seeing me instead of countless five second phone calls to inform me what the blood work says.

It's crazy.  The doctor I have not cared for is the doctor who seems to provide quality work when trying to find out what is wrong with me.  The reason I'm not a fan of his is because his work and words goes completely over my head.  He has not been able to dumb it down enough that I understand exactly what he says.  However, he is the only doctor who seems proactive to treat me and be a vitally important in this treatment.  I have a second appointment with him tomorrow.  He calls.  He does follow up calls.  And he gives me options on what I can do for my treatment.  According to dad, he has even explained what each course of treatment will do.  Not understanding him completely put to the side, this type of treatment is not normal.

I do not mean to upset people with this post but you must understand I have dealt with many doctors, nurses, techs, and specialists these past two months.  I had a doctor who made me feel awesome as a person but has failed to tell me why my blood clots have grown, not shrunk even though I did exactly what I was told for a month.  I do not consider myself an expert, but I have my opinions, which I suppose are ever changing, especially when you read this on a regular basis.